ALS - disconnected with yourself, slight restless, slight lack of focus

With the symptoms listed above it is not about working out too hard but rather being short on water.  It is very important with ALS to be hydrated.  So if you don’t you will get symptoms like in the title.

This happened to me on the other day so no workouts, but I went shopping, took things to recycle, and got a haircut.  So I was busy and didn’t drink any water.  So by the time I was home I was not feeling right.  It was fixed by drinking a few glasses of water.


I did not have pain in the beginning with ALS but pain started quick and it was constriction pain. It was easy to deal with - stretch the hand or if it was in my stomach lean back as much as I could. But by keeping legs straight when sleeping or watching TV helped and so did 250 mg of Magnesium. But then another pain started.  I call it point pain as it happened in a specific point.  It only lasted until I straightened out my leg or arm. So that is very good to know.

Once I had point pain that straightening my leg did help.  It was the most pain I had felt in a long time.  I straightened my leg but it took maybe 3 minutes to go away.

Another time I had back pain.  I could not deal with it and it meant I had walk or sit very carefully. I tried taking Tylenol Extra Strength but it did not help.  I was worried about how was I going to sleep.  I added three glasses of red wine and between it nd the Tylenol no more pain.

Sometimes when you have a bad pain, it is a sore area after the pain goes.  A hot shower helps with that.

I hope that this helps,


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