ALS - disconnected with yourself, very restless, and huge lack of focus

Hello there,

I have figured this out for myself so I thought I would share it. The symptoms I mention in the title hit me a few times but I figured it out.

First it goes away after a few hours. But to avoid getting it, you should exercise hard only every second day.  I was doing it every day and it was not good. It is sort of like using up all your energy. In between the hard workouts maybe do nothing or do a very short walk.

For me the hard workout was 4.5 KM walk over a variety of terrain.


I did not have pain in the beginning with ALS but pain started quick and it was constriction pain. It was easy to deal with - stretch the hand or if it was in my stomach lean back as much as I could. But by keeping legs straight when sleeping or watching TV helped and so did 250 mg of Magnesium. But then another pain started.  I call it point pain as it happened in a specific point.  It only lasted until I straightened out my leg or arm. So that is very good to know.

Once I had point pain that straightening my leg did help.  It was the most pain I had felt in a long time.  I straightened my leg but it took maybe 3 minutes to go away.

Another time I had back pain.  I could not deal with it and it meant I had walk or sit very carefully. I tried taking Tylenol Extra Strength but it did not help.  I was worried about how was I going to sleep.  I added three glasses of red wine and between it nd the Tylenol no more pain.

Sometimes when you have a bad pain, it is a sore area after the pain goes.  A hot shower helps with that.

I hope that this helps.


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