What I talk about below may not work for all ALS patients but it will for some.
I learned from an ALS doctor that people end up in wheelchairs when they get super weak.
I am trying to avoid being a wheelchair for as long as I can. I walk each day - first day short walk, and next day long walk. Do not do two long walks in a row as that will mess you up. In addition, at the ALS clinic I go to they have a Physical Therapist and I am going to spend some time with her to try and help my arms out.
The idea here is to avoid being super weak.
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6 thoughts on “ALS and wheelchairs”
Stay strong Michael.
Wish you a lot of power from switzerland.
Thanks very much Simon, will work hard at it. And I love your country. Spent a lot of time there in my youth.
Your health updates are so very real, they always have been. It’s very much appreciated that you keep us up to date, whenever you’re able.
Sorry Paul, but not sure what you mean. Can you explain a bit more?
I wish you the best Michael. There is hope in recent ALS research, like https://alsnewstoday.com/news-posts/2020/06/18/caffeine-oxidized-nad-bolsters-health-motor-neurons-of-als-mouse-model/ for which Nicotinamide Riboside (NAD+ booster and SIRT1 activator) and caffeine are easily available over the corner.
Thanks very much Angus. I checked with my clinic on your reference and it has not had human trials yet. But hopefully soon.