I thought I would share what I am living with. ALS is a tough disease that kills everyone that gets it, and has an amazing array of different symptoms.
For me it attacked my legs first and removed strength in them so I could not run any longer, nor walk up mountains, or even walk up stairs easily. It has now happened to my arms and hands. This means I need a lot of help to do things like cut my toenails, or carry laundry or empty garbage or open bottles. And if I go up the stairs a few times I will be so short of energy. I just sit and watch TV. I also get something I call constriction pain which is when a muscle constricts unexpectedly. Some doesn’t hurt and some hurts a lot. I also get a lot of random pain lately but it is slowly stopping.
The worst part is the doctors cannot tell you much. Other than you will likely end up in a wheelchair, and die sometime after that.
You have to start thinking differently. I cannot rescue people drowning in a river – which I have done before. I stopped a robbery once, but cannot do that any longer. I cannot hike or climb mountains any longer.
I forgot to mention that when you have ALS less alcohol impacts you more. So you cannot drink like you used too.
I have started to learn that ALS impacts the brain too. I have trouble focusing on things for any amount of time. I used to be able to read a book while flying across the Atlantic. Now I can read maybe 10 minutes and have to do something else. Which is why I am not doing technical articles any longer.
However, even with all that I cannot do, and the pain, I still can walk, talk, eat on my own and even drive so it is not all bad.
If you would like to donate to ALS research I would most appreciate it – find it here.